Dorothy Timewell lost her battle with ALS

(Lou Gehrig’s Disease) on March 19, 2006

 

A celebration of Dorothy’s life was held at her home on Sunday, March 26th with 150 of her closest friends.

 

Thanks to all that attended!!!

 

 

 

Updated 3/26/2006 11:36 PM

 

Daily notes on the health of Dorothy Timewell

Compiled December 2004 – July 2005

 

Day

Date

Schedule/

Activities

Medications, Supplements and Treatments

Strength/Agility Changes

Notes (Jim)

 

 

 

 

 

12/28

2004

Dr. Bhattacharya Neurologist Santa Cruz

EMG – Nerve Conduction Study

Doctor prescribed Rilutek (never filled)

Test was painful.

Diagnosed by Dr. Bhattacharya w/ALS (Amyotrophic Lateral Sclerosis)

1/6

Admitted to Stanford Hospital

None

Major weakening over 1 week

Provided all prior records to Stanford

1/7

Dr. Jamie Lopez & Neurological Staff - Stanford Hospital

5PM - IV Moxifloxacin

News was not well received.

Diagnosed by Stanford Neurological staff w/ALS (Amyotrophic Lateral Sclerosis)

1/8

Started diagnosis & treatment w/ alternative doctor

First Lyme Test – Western Blot

15-20% increase starting @ 4PM

 

1/9

 

Doxicycline, Flagil, Zithromiacin

 

Protocol is designed to flush our Burgdorferi, the cause of Lyme Disease

1/10

 

Doxicycline, Flagil, Zithromiacin

 

 

1/11

 

 

 

 

1/12

 

 

 

 

Thur 1/13

 

Bedtime: Tylenol Arthritis and ½ Ambien

 

 

Fri

1/14

Delivered Lyme Tests

Bedtime: Tylenol Arthritis and 1 Ambien

 

Very little strength

Sat

1/15

 

Bedtime: Tylenol Arthritis and 1 Ambien

Minus 10% over past 24 hours

Appetite Loss Unable To Ride (UTR) from bed.

Sun

1/16

 

Bedtime: Tylenol Arthritis and ½ Ambien

Minus 15% over past 24 hours

 

Mon 1/17

3PM Lumbar MRI Drove to Carmel long drive to Carmel and Monterey, looking for Dr. office.

Daytime:

Tylenol Arthritis

 

Bedtime:

For the first time in 4 days, no Ambien. Awoke during the night and took a Tylenol Arthritis pill, which gave some relief. 

Dorothy was stiff and weak in PM, probably due to the convertible drive to Carmel.

Able to rise. Strength increased during the morning until early afternoon.  After a lumbar MRI @ Noon and a long drive to Carmel and Monterey, Dorothy was stiff and weak.  Appetite remains a concern.

Tues 1/18

12PM Novic

Looked at Homes

Daytime:

 

Bedtime: ½ Ambien

Very little energy all day.  No increase in strength or agility

Awoke w/>4 hrs sleep Appetite better in PM, but still below normal.

Wed 1/19

Home

Daytime:

GSH 1 ½ tsp once PM

Bedtime: Melatonin 2.5mg

 

Able To Rise (ATR) from bed in AM UTR from chair.

Thur 1/20

Dez’s B-day party w/Laura

Daytime:

GSH 1 ½ tsp 3xpd on empty stomach w/juice

Bedtime: Ambien

AM: -15%

Bad morning “hung over”, possibly due to Melatonin.  UTR bed or chair

Fri

1/21

2 hr ride SV, SC Dez

Daytime:

GSH 1 ½ tsp 3xpd on empty stomach w/juice.

Bedtime: Ambien

No change

Weak in AM.  UTR from chair until PM ATR only by pulling on walker in front

Sat

1/22

Home

Daytime:

GSH 1 ½ tsp 3xpd on empty stomach w/juice w/ ½oz Goji juice.

Keflex 4xpd

Acidophilus 15mg 3-3xpd not w/Keflex

Bedtime: Ambien

AM: –10%

PM:  Normal

Weak in AM – UTR from chair until PM, Depressed, Frequent urination until evening

6” steps every 3 secs

Back hurts when pulled up from lying position.

 

 

 

 

Sun

1/23

Dez B Day Party 2PM

8PM: 10 arm lifts ea side Walked apt length for 20 min. Twisting arms extended in front more flexible.

Daytime:

GSH 1 ½ tsp 3xpd on empty stomach w/juice w/1 oz Goji juice.

Keflex 4xpd

Acidophilus 15mg 3-3xpd not w/Keflex

 

Bedtime: Ambien

AM: +15% Good spirits. Strength has increased.  Able to descend steps @ Kyle’s that she couldn’t yesterday. 

PM: “2X as much strength as last night.  Feeling more ABLE.” Palms hurt from walker.  

 

Good Day

AM: Headache persists on R/side. 10” steps every 3 secs ATR from chair w/walker

PM: 7PM burst of energy. Much more strength, Noticeably looser.

 

 

 

 

 

Mon

1/24

House Shopping 1100 - 1400 - sitting in car for 2 hrs

Phone calls to several friends 1900

Daytime:

GSH 1 ½ tsp 3xpd on empty stomach w/juice w/1 oz Goji juice.

Keflex 4XPD

Acidophilus 15mg 3-3xpd not w/Keflex

Bedtime:

AM: Good spirits Almost same strength as last night

PM: From 1400 on – strength that started last night continues. Washed dishes 1600. Walked w/3 wheel cart down exterior hallway 1900. ATR from chair w/o pulling on walker for 1st time.

AM: Able to rise from bed, unable to rise from chair mid-morning

PM: Handwriting is noticeably better 1600. Much more activity. More strong willed.

 

 

 

 

Tues

1/25

Spect Scan in SF

Immobilized all day in car/ Scan Doing arm exercises PM Walked the length of the Apt 12X

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/juice w/1 oz Goji juice; Keflex 4xpd; Acidophilus 15mg 3-3xpd not w/Keflex

Bedtime: Baclofen

AM: Good spirits again

PM: Twisting arms extended in front more flexible again. R/side headache continues.

Able to raise left foot 6” above floor while standing w/walker

AM: Attitude and spirits high

PM:  More energy. Improvement held back due to long drive.  - 12” steps every 2 secs. ATR from chair w/walker quickly. Definite improvement observed.

 

 

Wed

1/26

0900 Arm exercises

1100 Lender

1600 Real Estate Agent

1800 Dinner out w/entire family

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/juice w/1 oz Goji juice; Keflex 4xpd; Acidophilus 15mg 3-3xpd not w/Keflex

Bedtime:  Baclofen, Tylenol Arthritis

 

AM: Higher spirits today - R/side headache continues

PM: Continues to improve AT p/u flats off ground f/chair walked w/walker well

AM: Attitude and spirits high.  Standing her ground No down swings for several days.  Strong willed.

PM:  The Keflex appears to be working She continues to improve daily

 
 
 
 
 
 
Thur

1/27

1100 RE Agent

Made offer

1800 Dinner w/Laura

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/juice w/1 oz Goji juice; Keflex 4xpd; Acidophilus 15mg 3-3xpd not w/Keflex

Bedtime: Ambien, Baclofen

Restless night of sleep Stiff in AM

Overall slight % increase in mobility and strength

Dorothy’s personality has returned.  Now we work on her physical strength, balance and agility.

1)                  Today, Dorothy received a copy of the Spect Scan Report, performed by California Pacific (SF) on Jan 25th.  The report, showed an abnormality that may have resulted from previous dental work.  Further reading of the Spect Scan films by Dr. Tufft will occur on Thurs, February 3rd.

2)                  Based upon Dorothy’s positive response to various antibiotics on 4 separate occasions: June 2nd, 2004 (Ancef); Jan 6th, 2005 (Moxifloxacin), Jan 10th, 2005 (Doxicycline, Flagil, Zithromiacin) and most recently Jan 23rd, 2005 (Keflex), Dorothy, Jim and Dorothy’s consulting physician believe that the recent ALS symptoms are being caused by neurotoxins, being released by an infection in Dorothy’s bone structure.  Further clinical testing, analysis and diagnosis will occur within the coming weeks. 

3)                  A supplement protocol has been developed to increase Dorothy’s recovery speed.  Additional supplements will be added to the existing program, as the doctor advises. 

 
 
 
Fri
1/28

0900-1100 PO Retiree Party

1500-1600 Bank of the West

Cooked dinner (w/help) for 1st time in one month

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/3 oz juice w/1 oz Goji juice; Keflex 4xpd (missed one dose); Acidophilus 15mg 3-3xpd not w/Keflex

Bedtime: Ambien, Baclofen

PO Party was great for mood.  Seems to have reached a plateau in strength and agility increase. Only ATR f/chair 3X/day.  By bedtime was very weak and worn down.

Busy day.  By noon today, the Keflex seemed to have reached max strength against the neurotoxins.  By evening, she was worse.  L/hand hurts due to holding walker. VERY tired and wants to sleep.

Sat

1/29

Got up early

Walked in apt

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/3 oz juice w/1 oz Goji juice; Keflex 4xpd; Acidophilus 100mg 1-3 xpd not w/Keflex

Bedtime: Ambien, Baclofen

No more strength than yesterday.  Slipping backwards somewhat.

Starting of Baclofen may have had an adverse effect.  Still UTR f/chair 100% of the time

Sun

1/30

Apt most of the day – Visit to Kyle’s. Signed contract for purchase of new home.

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/3 oz juice w/1 oz Goji juice; Keflex 4xpd; Acidophilus 100mg 1-3xpd not w/Keflex

Bedtime: Ambien

Continued improvement albeit less than 5%/day More flexibility in arms daily

Dorothy was able to descend steps @ Kyle’s w/o assistance almost all the way.  It was scary, but she could do it. 

Mon

1/31

Blood Draw

Visit from Morgan

Mike visited from East Coast

30-day Escrow opened

 

Daytime: GSH 1 ½ tsp 2xpd on empty stomach w/3 oz juice w/1 oz Goji juice; Keflex 3xpd; Acidophilus 100mg 1-3xpd not w/Keflex, Missed 1 dose GSH due to blood draw

Bedtime: Ambien

Bad morning. Minor improvement in PM.  Balance deteriorated in evening. Ringing in R/ear increased. R/side head ache worse. R/shoulder and L/hand still hurts. Lack of Baclofen causing some spasticity in R/leg.

Slow incremental increases (if anything at all!).  Spirit remains high, but the waiting is driving Dorothy crazy!

Opened Escrow on home purchase for the entire Middleton/Timewell/Santoro clan.  Home is completely wheelchair accessible and will be perfect for Dorothy’s recovery.  Home has 20’ X 40’ pool and an airplane hanger.  Swimming is in Dorothy’s future, and flying may also be.

Tues

2/1

1300-1800 At Kyle’s w/Dez

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/3 oz juice w/Goji juice; Keflex 4xpd Acidophilus 100mg 1-3xpd not w/Keflex

Cognitive Factors – 1-2xpd

EPA/DHA 3-2xpd w/meal

Bedtime: Ambien

Able to perform small walking tasks better everyday.  Mornings are still not good, but the burst of energy in the late afternoon makes up for it.

Changes in the supplement protocol gives Dorothy hope.  Looking forward to Thur appt.  Find the source of the neurotoxins!!!

Wed

2/2

1500 met w/surveyor at Property Walked to Hanger Door w/walker

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/juice

Keflex 4xpd

Acidophilus 100mg 1-3xpd not w/Keflex

Cognitive Factors 1-3 xpd

EPA/DHA 3-2 xpd

Bedtime: Ambien

Slowly getting more strength, but still UTR (unable to rise) from sitting position regularly.  Emotional strength is waning.

Bad morning - Mornings and evening have been less than acceptable lately, but mid-day outings make her happy.

Dorothy is very anxious about tomorrow’s appt w/Dr. Tufft.  She is praying that the infection in her jaw is what is causing the ALS symptoms, and that an end to her debilitating condition is in sight.

 
 
 
 
Thur

2/3

1130 Dr Tufft Spect Scan Reading Oakland

 

1830 Laura Visits Dorothy

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/juice

Keflex 4XPD

Acidophilus 100mg 1-3xpd not w/Keflex

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Bedtime: Ambien

Again, a small incremental improvement in strength.  Laura and our doctor gave Dorothy strength to continue on course.

After hearing a dissertation from Tufft, Dorothy was less than enthusiastic and lost confidence.  Kind of like getting slugged in the gut.  Consulting doctor made suggestions for course changes.

Note: Expectation of the Appt w/Dr. Tufft was higher than it should have been.  Once again, we are dealing with the Medical establishment that refuses to believe that neurotoxins can cause the symptoms as presented.  An appt w/a Dental Surgeon was made after being recommended by Dr. Tufft.  Dr. Swan’s next appt is mid April.  We refuse to wait that long.  We now need to find a Dentist that has experience with cavitations and/or toxic root canals. 

 

 

Fri

2/4

Limited activity in AM.  Drove her motorized 3-wheeler scooter for the 1st time. 

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/juice

Keflex 5xpd

Acidophilus 100mg 1-3xpd

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Baclofen 1-1xpd

Bedtime:

No more energy than yesterday.  Spirits were better, probably due to Laura’s visit last night.  Very stiff legs.

Added Baclofen back into the mix due to on-going spasticity and rigidity in her legs after sitting.

Sat

2/5

Very little activity all day – Washed dishes in PM Cooked dinner w/help only lifting to/from oven.

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/juice

Keflex 5xpd

Commensal 1-1xpd

Acidophilus 100mg 1-3xpd

Cognitive Factors 1-1xpd

EPA/DHA 3-2xpd

Baclofen 1-1 xpd

Bedtime: Ambien

Small incremental increases continue.  Still UTR (unable to rise) out of bed or chair 100% of the time.

Ambien precluded Dorothy’s ability to get up middle of the night. No more Ambien! 

PM Able to cook a dinner – YEAH!!  Still VERY limited physical strength.  Looking forward to move to Sunlit Lane.

Sun

2/6

Cooked bacon, eggs, Ezekiel toast Low key morning Went w/daughters to IKEA for Super Bowl Get-away

Daytime: GSH 1 ½ tsp 3xpd on empty stomach w/juice

Acidophilus 100mg 1-3xpd

Keflex 5xpd

Commensal 3-3xpd

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

 

Bedtime: Ambien, Baclofen

Little to no change in strength.  Emotionally stronger after time w/kids.  Added Baclofen, as it reduced leg spasticity.

Jim got a break when the girls spent the day @ IKEA.  The bill wasn’t too bad, either.

Mon

2/7

Little activity. 

Daytime: GSH 1 ½ tsp 3xpd

Keflex 5xpd not w/Commensal

Commensal 3-3xpd

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Bedtime: Baclofen

Noticeable increased strength.  ATR from chair w/o walker 2 times in a row

Change possibly due to increased antibiotics.

Dorothy’s Consulting Doctor is researching dentists able and willing to perform biopsy, removal and treatment of Dorothy’s jawbone cavitations.  Amazingly, there are very few dental surgeons who have the equipment, expertise and experience in this procedure.

Tues

2/8

Rode in car to property and Tufft’s office in Oakland - P/U Spect Scans and Dental X-Ray films

Daytime: Commensal 3-3xpd

Keflex 5xpd not w/Commensal

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 2-2xpd

Bedtime: Baclofen

Slightly stronger both emotionally and physically. 

I pray daily that we can continue this incremental increase in strength and balance.

Dorothy has an appointment w/a DDS in Santa Rosa, next Thursday, February 17th.  Dental surgery should begin shortly after the cavitation is confirmed.  Antibiotics (Keflex) will be kept at the current dose, until the bone infection is removed.  After removal, IV antibiotics may be used to assist w/recovery.  Property escrow is now scheduled to close February 25th.  The move-in is tentatively set for the following day.

Wed

2/9

Walked around Property for 30 minutes

Daytime: Commensal 3-3xpd

Keflex 5xpd not w/Commensal

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Bedtime: Baclofen

Incremental increases continue.

Looking forward to the new home.  Dr. Tufft’s Report

A written report from Dr. Tufft was reviewed today.  Dr. Tufft’s analysis of the Spect Scan results is consistent w/the current plan that dental health could be a significant factor in Dorothy’s current medical health.

Thur

2/10

Little Activity Laura brought dinner

Daytime: Commensal 3-3xpd

Keflex 5xpd not w/Commensal

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Bedtime: Baclofen

No significant increases today.

Brain Vibrance to be added tomorrow. 

Preliminary blood work results from BodyBio arrived.  Test results are consistent with the presence of an infection causing the release of neurotoxins. The consulting doctor has reviewed recommendations from BodyBio and a supplement regiment has been developed.  Supplements will be added every few days, until the full regiment is reached.

Fri

2/11

Very little Activity

Daytime:

Brain Vibrance 1-2xpd

Cognitive Factors 1-3xpd

Commensal 3-3xpd not w/food

EPA/DHA 3-2xpd

Keflex 5xpd not w/Commensal

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Bedtime: Baclofen

No changes

Waiting, waiting, waiting for changes and answers.  Over 27’, Dorothy uses 44 steps =

7.3”/step

Diet: Gluten-elimination diet.  Grass-fed meat. Organic food whenever possible.

Sat

2/12

Went to breakfast w/family

No activity rest of day (sat for up to 5 hours @ a time).

Baclofen

Brain Vibrance 1-2xpd

Cognitive Factors 1-3xpd

Commensal 3-3xpd not w/food

EPA/DHA 3-2xpd

Keflex 5xpd not w/Commensal

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

UTR from bed or chair w/o help.  Much weaker.  Legs are very stiff, “frozen up”.

Noticeably weaker and less able to function on her own.  Legs and arms are very arthritic.

Sun

2/13

Dorothy had a GREAT evening out to dinner on the wharf with the Nolan family.  Over a dozen of them invaded Stagnaro’s and had a blast.

Baclofen

Brain Vibrance 1-2xpd

Brain Sustain 3-2xpd

Cognitive Factors 1-3xpd

Commensal 3-3xpd not w/food

EPA/DHA 3-2xpd

Keflex 5xpd not w/Commensal

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

No change.  Walked a bit around the apartment.  Felt a bit stronger during the day

No noticeable improvement. Spirits were lifted in the evening when she spent time w/family

Mon

2/14

No activity

Baclofen

Cognitive Factors 1-3xpd

Commensal 3-3xpd not w/food

EPA/DHA 3-2xpd

Keflex 5xpd not w/Commensal

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Much weaker than yesterday.  Able to Rise from chair un-assisted only a few times

Brain Vibrance and Brain Sustain will be deleted tomorrow due to her decline.  Spirits are low.  We are hoping for the best tomorrow.

Tomorrow is a “wildcard”.  Starting tomorrow afternoon, Dorothy will start several IV Phospholipid Exchanges with Dr. Howard Press over the next few days.  We will evaluate our willingness to take these treatments tomorrow.

Moving day to the new home has been set for Saturday, February 26th. 

Tues

2/15

Drove to Monterey for Treatment

Baclofen

Cognitive Factors 1-3xpd

Commensal 3-3xpd not w/food

EPA/DHA 3-2xpd

Keflex 5xpd not w/Commensal

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Procedure: 1 IV Phospholipid Exchange

No significant change

Dorothy will take 3 IV Phospholipid Exchanges/ day starting 02/22/05.  Infusions will be 90 minutes apart

7.3”/step

We remain committed to the use of Lipid and GSH in the overall scope of Dorothy’s treatment.  Treatments are being scheduled for next few weeks.

Wed

2/16

Little activity

Baclofen

Cognitive Factors 1-3xpd

Commensal 3-3xpd not w/food

EPA/DHA 3-2xpd

Keflex 5xpd not w/Commensal

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

No change

Elimination of Keflex to avoid proper reading of dental metals and cavitations.

Lyme results indicate the presence of Burgdorferi, the cause of Lyme Disease.  Dorothy will be receiving treatment for Lyme within the context of her entire treatment.  Clinical indicators require the proper diagnosis of the infection in Dorothy’s upper left jaw by Dr. Landerman tomorrow.  Treatment for the possible cavitation will be sought, in addition to removal of dental metals.

Thur

2/17

Drove to Dr. Landerman’s in Sebastopol

Baclofen 1-2xpd

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Slurred speech, weaker muscles, still hunched over walking

Negative effects of the elimination of Keflex (the only antibiotic) are being noticed.

Performed Cavitat™ imaging.  Reading of scan indicates extensive cavitations in the upper jaw and significant infection on both sides of the bottom jaw.  As a result, all upper teeth and many bottom teeth will be removed over the next 4-6 weeks.  Removal of all dental metal remains a high priority, based on Dorothy’s overall health.  Scheduled removal of all dental metal on Saturday. 

Fri

2/18

Day Off – Spent the day in Bodega Bay

Baclofen 1-2xpd

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Higher spirits, but overall weakening continues.

 

Sat

2/19

0930-1230 Dental Surgery rode back from Sebastopol.  Friends & family visit topped off the evening.

 

Baclofen 1-2xpd

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Procedure: Dental Metal Removal

1:00P – Energy level doubled and clearer thinking (“Like a fog was lifted”), able to raise arms slightly higher, able to walk easier and stand taller.

IMMEDIATE positive response to removal of dental metal was incredible!!  Dr. Andrew Landerman’s expertise was awesome.  Only a local anesthetic was used and Dorothy is still almost pain free from the dental work.  8.3”/step

Sun

2/20

Little activity.  At apartment all day

Baclofen

Cognitive Factors 1-3xpd

Energy Shake 1-2xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Zithromax 2-1xpd

Not significant, but a mild improvement in AM.  Tongue has a few sores and is sensitive to acids.  Overall weaker and legs stiff in PM.  Eyes very dry all day.

Still almost pain free dental work!!  Nice Work ANDY!!  Baclofen deleted as a trial. Unable to start energy shake due to tongue problem. 

8.5”/step

Mon

2/21

Visited w/friends @ apt.  Very bored in PM

Cognitive Factors 1-3xpd

Energy Shake 2xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Zithromax 1-1xpd

No minerals

No significant change. Still UTR from chair or bed.  Tongue very sensitive to acids and feels swollen.  Overall weaker and legs stiff in PM. 

Anxiously awaiting more dental work.  No contact w/Press.  Unable to start energy shake due to sensitivity to soluble C.

Tue

2/22

Met Home seller

Signed loan docs

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Zithromax 1-1xpd

No minerals

Weak most of the day.

W/Dr’s consent, Zithromax will be deleted Computer problems delayed publishing info

Wed

2/23

Little activity.

Cognitive Factors 1-3xpd

Energy Shake 2xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Zithromax 1-1xpd

No minerals

Higher spirits.  ATR f/chair in early PM only. 

Legs are not stable. 

Thu

2/24

Haircut @ Noon Little activity

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

No minerals (until after metals test)

Higher spirits, but overall much weaker. Hands have become unworkable.  Weaker in PM. Used W/C to go to Supercuts.

Depressed in the PM.  Not being able to handle filing papers has been hard. She becomes frustrated, as she “can’t do anything”. 

Fri

2/25

Ride to Sebastopol

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

No minerals (until after metals test)

Procedure: Removal of R/upper 5 teeth and treatment of cavitation in the jaw above

Very weak, but NO dental pain after removal of teeth #1-5.

Ringing in Dorothy’s

Sat

2/26

Moving Day

 

No minerals (until after metals test)

Too concerned about what was going on around her to take proper supplements

The turnout to help w/the move was awesome

Thanks to all of you who helped move 3 households into 1 to assist Dorothy in her recovery.

Sun

2/27

First day in the new house

Chelate Toxic Metals Test

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

 

Very weak, probably as a result of yesterday.

 

Mon

2/28

Rode in car to appointments Applied for Social Security retirement

Cognitive Factors 1-3xpd

EPA/DHA 3-2xpd

Phyto-ADR 3-3xpd

Prenenolone 1-2xpd

Procedure: 2 IV Phospholipid Exchanges

Weak, but no decrease

Updates will be done more frequently when the DSL line gets installed Friday.  Thanks for understanding. Cancelled Novic’s appt

Tue

3/1

Dental appt in Sebastopol – suture removal only

Energy Shake 1/day

See supplements in use below.

No significant change

Dorothy starts a complete supplement program. Jim goes back to work.

Wed

3/2

Little activity

Energy Shake 1/day

See supplements in use below.

 

 

Thur

3/3

 

Energy Shake 1/day

See supplements in use below.

Speech started to slur

Jim’s return to work is having an impact on Dorothy

Fri

3/4

Very little walking

Energy Shake 1/day

See supplements in use below.  Started oral Ceftin in PM

Right hand getting weak. Unable to use walker for more than a few minutes

Caught a cold, which is making her a bit weaker

Sat

3/5

Family came over to help Dorothy.

Energy Shake 1/day

See supplements in use below

Ceftin 1/2xpd

OTC Cold Remedies

Overall a bit weaker in the PM Unable to use walker in PM at all

Still has a cold Supplement program to check the

Sun

3/6

Loving her new home

Added more Vitamin C into her diet

Weak due to cold

Her cold has gotten her down

Mon

3/7

Watched TV & Tivo - Rode to Monterey

Ceftin & OTC cold meds

Cut out supps due to cold

2 IV Phospholipid Exchanges

Stable, very little energy

Getting a bit better as she recovers from a cold

Tues

3/8

Watch Tivo & sometimes TV

Ceftin & OTC cold meds

Cut out all supps due to cold

Much stronger, but still weak

Seems to be recovering from the cold

Jim finally got an internet connection (even if it’s dial-up) to allow for updates.

Wed

3/9

Monterey Lunch w/Morgan @ Bubba Gumps

Ceftin

2 IV Phospholipid Exchanges

 

More energy.  Able to rise from wheelchair. Leg muscles seem less cramped.

Accepting that she is disabled.  Doesn’t want to retire, but sees no choice.

Thurs

3/10

Little Activity

Ceftin

OTC cold meds

Unable to sleep.  Still has a cold

Jim lost internet line

Fri

3/11

Sebastopol - Dr. Landerman Dental surgery

OTC cold meds

Procedure: Removal of 1 lower right tooth and treatment of cavitation in the jaw below.

1st Dental pain post surgery. Hard to sleep.

Andy Landerman didn’t want to pull a lot of teeth, as Dorothy was weak from a cold.

Only removed 1 lower right tooth - Approx 20% of the teeth have been removed and had the cavitations underneath treated.  80% left to go!

Sat

3/12

Activity around house

None

Very hard to sleep. 

1st day of being free from the recent cold

Sun

3/13

Day-long visit w/Laura @ home

None

ATR (Able To Rise) from W/C most of the time

Increased strength.

Dorothy, Jim & Dr. Feig are very pleased with Dorothy’s improvements and look forward to the removal of all cavitations within the next month.

Mon

3/14

Rode to Monterey w/Brother Bob

2 IV Phospholipid Exchanges

Unable to sleep.

Got back dial-up line

Tue

3/15

Sat in W/C directing Morgan on where to plant in the garden

Resumed supplements

Increased strength.

 

Toxic metals test shows increased levels of Mercury, which was expected from the dental metals, and Lead.  The high levels of lead indicate Dorothy had some type of environmental exposure to lead, quite likely as a child and young adult.  Test results will be posted here soon.

Wed

3/16

Rode to Monterey w/Brother Bob

2 IV Phospholipid Exchanges

Supplements (Too many to list)

 

 

After reflection on where she got lead exposure, Dorothy recalls that her Dad & her painted the new homes that they moved into every 4-6 months. 

Thurs

3/17

Good day around the house.

Limited supplements

Took a shower by herself – 1st time in one month.

Incrementally more strength.

Dorothy & I would like nothing better than to save her teeth.  However, all of her teeth had extensive metal fillings and, as indicated by the Cavitat™ scan, caused some major cavitations in her upper and lower jaw.  To eliminate the extensive cavitations, we will only be able to save only the bottom front four teeth.

Fri

3/18

Rode to Sebastopol in PM

Appt w/Landerman – Removed sutures from lower right.

Feeling weak – realizes her arms are getting weaker

 

Due to other patient’s needs, Dr. Landerman was unable to pull any teeth.  He has requested that we return mid-week for extraction of all remaining upper teeth and fitting of a denture.

Sat

3/19

Shopping w/Kyle

Limited supplements

Slept until 11 – Good day

Needed the sleep

Sun

3/20

Rode w/Laura to Pescadero

Back on full supplements

Weak in arms

Didn’t sleep last night

Mon

3/21

Rode w/ Bob to Monterey

2 IV Phospholipid Exchanges

Supplements

Very weak – Bad Day

Feet and legs less swollen

Rented adjustable bed and purchased lift recliner.  The reality of these aids is not sitting well w/Dorothy.

Tue

3/22

Little activity

Took no supplements

Another Bad day

Talking to her employer about her medical retirement made her very sad.

Dorothy has failed (until &PM today) to take her supplements.  Her emotional health is poor.  Received results of the Toxic Metals Test, which indicate an extremely high level of lead in her system.

Wed

3/23

Rode to Sebastopol

Removal of all upper teeth and 1 lower R/wisdom tooth. A large abscess was removed above tooth 8.  This infection was producing strong toxins.

Weak in AM.  Removal of teeth and cavitation treatments caused significant pain

Feet and legs are much less swollen!!  Most likely as a direct result of the removal of cavitations.

Thur

3/24

Little Activity

Slept all day

Took no supplements except InflaThera™

Significant pain on upper teeth

Swelling of feet and legs gone!

Fri

3/25

Little Activity

Took some supplements

Little change Teeth pain

 

Sat

3/26

Visit from Dorothy's sister-in-law, Vicki Boscacci, and niece, Brenna Timewell from Valley Springs

Took some supplements

Slightly stronger - able to rise easier, but not w/o help

Lipids and Cavitation removal are seeming to have an effect

Sun

3/27

Spent day w/family

Took some supplements

Ate very little all day

Very weak and depressed Teeth pain

Bad day overall

Mon

3/28

Rode w/ Bob to Monterey

2 IV Phospholipid Exchanges

Some Supplements

Ate well

Better day.  Able to rise and stand holding onto back of chair.

More walking

Tue

3/29

Made lots of phone calls

Some supplements

Ate 2 healthy meals

Much better day

Less tooth pain

Dentures loose

Able to rise from wheel chair unassisted and stand holding on

Wed

3/30

Rode in car to Sebastopol

Removal of upper sutures

Dentures adjusted

Much better day.

 

Thur

3/31

Little activity around the house

Some supplements

Eating well

Increasing in strength incrementally

Sleeping 10-12 hours/day

Fri

4/1

Stayed @ home

 

Able to rise from W/C on a consistent basis

 

Dr. Feig spoke to Dr. Patricia Kane (PK) today.  PK is changing the supplement protocol.  Growth (an other) hormones; Magnesium; Vitamin C will be included in next week’s infusions.

Sat

4/2

Visited w/friends by the pool

Some supplements

Ate well all day

Took a shower by herself – A 1st for the year

Able to get into golf cart easier for her daily neighborhood tour

Sun

4/3

Visited John Timewell, Dorothy's brother, Vicki Boscacci, Brenna and Colby Timewell in Valley Springs

Ate well again

No change

 

Mon

4/4

Rode w/ Bob to Monterey

2 IV Phospholipid Exchanges

Most Supplements

 

Able to raise L/hand to her face – another 1st in months

 

Tue

4/5

Stayed at home

Some supplements

No change

Feeling okay

 

Wed

4/6

Rode w/ Bob to Monterey

2 IV Phospholipid Exchanges

Magnesium Injection

Supplements

No change

Feeling okay

Lower left teeth painful

Thur

4/7

Stayed at home

Supplements

Very depressed

Very bad day

Have now switched to a high-protein, low fat, natural diet.  Grass-fed meat, organic eggs.

Fri

4/8

Stayed at home

Back on supplements – will update Sunday

Feeling much better

Eating well

Sat

4/9

Visit w/Karen & Denise

Supplements

Good spirits, but weak

Eating very well.

Sun

4/10

Visit w/Laura & Chandler

Supplements as listed below

Good spirits, a bit stronger

Still eating good

Mon

4/11

Rode w/ Bob to Monterey

2 IV Phospholipid Exchanges

Magnesium Injection

Supplements

Very weak

Lower left teeth painful

We are looking forward to completing the removal of the cavitations tomorrow.  Within the next few days, Dorothy will be on antibiotics.  First she will be taking oral Keflex (same dosage as taken 01/22/05 – 02/19/05).  The results of this antibiotic, along with a recent Lyme Test, which will help identify the exact Lyme that she has, will determine the next step, which will most likely heavy doses of antibiotics via IV or injection.

Tue

4/12

Rode to/from Sebastopol

Removal of 2 lower left teeth. Large cavitation was removed below #21.  A cavitation below #22 was removed.  A total of 7 front lower 2 molars remain for the bridges.

Some Supplements

Vicodin

Surgery more painful than all previous surgeries.  A large amount of rotting jawbone was removed. Very weak in evening.

Overall weakening over the last week, but the prospect of Oral then IV antibiotics to treat the Lyme within the next few DAYS is encouraging.

Dr Landerman’s expertise continues impress both Jim & Dorothy.  Why won’t mainstream doctors and dentists acknowledge that dental health has a DIRECT effect on medical health?  Follow the Money!

Protect your health – Make an appointment w/a Biological Dentist Soon

Wed

4/13

Rode w/ Bob to Monterey

2 IV Phospholipid Exchanges

1 Magnesium Injection

Vicodin

Very weak today, seemingly from the dental surgery. 

 

Q: What is a jawbone cavitation in medical terms?     A: Ischemic Osteonecrosis

Q: What is a jawbone cavitation in layman’s terms?   A: Dead bone from poor blood flow

Thur

4/14

Stayed in W/C around house

Most supplements

Tylenol

Feeling a bit better.  More agile.

Better spirits

Trimmed strawberries w/small knife.  Slight improvement.

Fri

4/15

More activity, but limited to W/C

All supplements listed

Tylenol

Lower left jaw very sore. Pain tolerable

In W/C most/day 20 mins w/walker

Sat

4/16

Visited w/Laura & Karen all day in the sun

All supplements

Tylenol

No change

 

Sun

4/17

Shopping w/Kyle Mojo & Dez

All supplements

 

No change

3”/step (labored)

Mon

4/18

Rode to/from Sebastopol

Removal of Sutures #21 & 22 - Keflex & all supplements

Slightly weaker

 

Tue

4/19

Rode w/ Bob to Monterey

2 IV Phospholipid Exchanges

1 Magnesium Injection

All supplements

Very weak in AM. “Feels like something is draining in my head”

Results of the removal of the cavitations?

Wed

4/20

Rode w/ Bob to Monterey

2 IV Phospholipid Exchanges

1 Magnesium Injection

All supplements

Deleted Keflex in PM

Added Activated Charcoal to clean out toxins every 2 hours.

Vitamin C every 2 hours

Feeling much weaker

 

Effects of the 4/12 surgery may be causing residual weakness

Thur

4/21

Stayed at home Little Activity

All supplements by evening Activated Charcoal every 2 hrs.

Vitamin C every 2 hrs

Stable, but weak

Better by evening

Needs help, but seems to be improving slightly

Fri

4/22

Went to Dr. Randy Baker in Santa Cruz for IV Therapy

IV Vitamin C 25 Grams - 2 PM

1 Magnesium Injection

All supplements

Activated Charcoal every 2 hrs.

Vitamin C every 2 hrs

Better before IV

Weaker after IV

 

Sat

4/23

ALS Group Mtg. Watsonville

Nolan Gathering in San Jose

All supplements

5 - Activated Charcoal / 4 hrs.

 

Weak in the morning

Slightly stronger in evening but very tired.

Support group was awesome. Great resources and ideas.

Sun

4/24

Visited w/Laura, Chandler, Kyong & Bobbie

All supplements

5 - Activated Charcoal / 4 hrs.

Slightly stronger in PM  Able to ride from W/C 1st time in 1 week.

Very strong spirits. 

Laughed a lot w/Kyle & visitors

Mon

4/25

Rode w/Jim to Monterey

All supplements

5 - Activated Charcoal / 4 hrs.

2 IV Phospholipid Exchanges; Magnesium, Leucovorin injection

Stable.  Historically weaker in AM

Still has good spirits. Able to rise from W/C occasionally

Tue

4/26

Rode w/Jim to Sebastopol

All supplements

300 Mg – 1/2x day

Overall weaker in arms

Started Rifampin (antibiotic) in the evening.

Wed

4/27

Rode w/Jim to Monterey

All supplements

2 IV Phospholipid Exchanges; Magnesium, Leucovorin injections

Upset stomach in evening

Continued w/Rifampin

Thur

4/28

Slept in during the AM.  Rode to see Dr. Baker

All supplements

Rifampin 300 Mg – 1/2x day

Consultation w/Randy Baker

Bee Venom & Scar therapy

Higher spirits, but weak.

Strength stable

The hormone therapy is having an effect

Increased Acetyl L-Carnitine to 2,000Mg/day.  Replaced Kirunal w/Arctic Cod Liver Oil.  Replaced Vitazyme w/Wobenzym based on recommendations from Randy Baker.

Fri

4/29

Dr. Baker’s office Soquel

All supplements

Rifampin 300 Mg – 1/2x day Consultation w/Randy Baker

Selection of an antibiotic

IV Vitamin C 25 Grams

Much higher spirits. 

Strength is stable.

Female hormone therapy seems to be having a positive effect. Dorothy is very enthused w/Randy Baker’s healing approach

Sat

4/30

Stayed at home Little activity

Some supplements.

Rifampin 300 Mg – 1/2x day

Strength is stable.

 

Sun

5/1

Stayed at home Visited w/Laura

All supplements

Rifampin 300 Mg – 1/2x day

Strength is stable

 

Mon

5/2

Rode to Monterey w/Jim

All supplements

2 IV Phospholipid Exchanges, Leucovorin

Rifampin 300 Mg – 1/2x day

Better mood. 

Obtained E-Lyte Minerals in droppers % Protein Shake - will take in mid-morning

Tue

5/3

Stayed at home Short ride to Santa Cruz

All supplements

Continue w/Rifampin

Cefzil 500 Mg – 1/2x day

Weak in Morning

Cats Claw, PhosCol & Ox Bile before bed last night is working

Wed

5/4

Rode to Monterey w/Jim

All supplements

2 IV Phospholipid Exchanges, Leucovorin

Weak in morning again.

Continue w/Rifampin & Cefzil

Thur

5/5

UCSF ALS Satellite Clinic Monterey 10-4

- Most supplements

Continue w/Rifampin & Cefzil

Weak most of the day

Resources and evaluation @ UCSF were great.

Dorothy is ordering a power chair through UCSF that will allow her mobility that she doesn’t currently have. 

Fri

5/6

Dr. Baker’s office Soquel

All supplements

IV Vitamin C 50 Grams

No significant change

Continue w/Rifampin & Cefzil

Sat

5/7

Stayed at home

All supplements

 

No significant change

 

Sun

5/8

Breakfast out w/daughters

No supplements

 

No significant change

 

Mon

5/9

Rode to Monterey

All supplements

2 IV Phospholipid Exchanges, Leucovorin

Slight weakening

 

Tue

5/10

Stayed at home  Visit from longtime friend Mike

All supplements

Slight improvement in arm strength.

Possibly due to introduction of Ceftin

Wed

5/11

Rode to Monterey

All supplements

2 IV Phospholipid Exchanges (37th Lipid Exchange)

No significant change.

 

Thur

5/12

Stayed at home

Appt. w/Dave Alcorn Sound Alternatives

All supplements

No significant change.

 

Fri

5/13

Rode to Hollister

Dental Exam, Dr. Nordstrom

Cranial Exam Dr. Turzo

No significant change.

 

Sat

5/14

Stayed at home Visit w/Laura

All supplements

Better mood.  No stronger

Feels that Dr. Turzo will be a resource in the future.

Sun

5/15

Stayed at home on deck by pool

All supplements

No significant change.

 

Mon

5/16

Stayed at home

All supplements

No change

 

Tue

5/17

Traveled to Sebastopol w/Jim

Dental Exam, Dr. Landerman

Denture went to lab for fitting

Very poor spirits

Wed

5/18

Went to PT in Santa Cruz

Physical Therapy was helpful

Most supplements

Sally (PT) was great

Dr. Chung cancelled due to a surgery.

Thur

5/19

Travel in AM to Sebastopol w/Jim Meet w/ALS PT @ home

No supplements

Denture fits better. 

 

The local ALS coordinator and a wheelchair vendor delivered a loaner power wheelchair from MDA and is getting several other items to help facilitate her needs.

Fri

5/20

Stayed at home in AM Went to Baker in PM

EDTA, Glutathione, DMPS via IV. Collection for Toxic Metals Test. Few supplements

 

 

Sat

5/21

Stayed at home w/family & friends

Few supplements.

No significant decrease as a result of the Chelation.

 

Sun

5/22

Stayed at home Visited w/Laura

Few supplements.

 

No longer taking Cefzil.

Mon

5/23

Traveled to Santa Cruz

All supplements

Physical Therapy 3PM

Feeling weaker

 

Tue

5/24

Traveled to Soquel

Few supplements Dr Baker IV Vitamin C - 50 Grams w/minerals

 

 

Wed

5/25

Scotts Valley

Appt w/Surgeon

No significant impact from Vitamin C

 

Thur

5/26

Traveled to Sebastopol

Antibiotics - No supplements Denture Alignment

 

Cancelled OT, Baker & Eye Appt to have a port placed tomorrow

 

Fri

5/27

Dominican Hosp 10AM-4PM

Antibiotics - No supplements

Port implanted

Pain in the PM from surgery

Sat

5/28

Visit w/Laura & Karen

ALS Support Group Watsonville

Antibiotics - No supplements

Good spirits

 

Sun

5/29

At home w/family

Antibiotics - No supplements

 

 

Dorothy is no longer able to feed herself consistently.

Mon

5/30

Visited w/Laura at home

Antibiotics - No supplements

 

 

Tue

5/31

Rode to Monterey

Some supplements

2 IV Phospholipid Exchanges, Leucovorin, Phynel Buturate

 

Eliminated Rifampin

Wed

6/1

Rode to Santa Cruz

Physical Therapy

Dr. Turzo

 

 

Thur

6/2

Stayed @ home

Some supplements

No change

 

Fri

6/3

Rode to Santa Cruz w/Jim

Occupational Therapy

IV Rocefin @ Dr. Baker

 

 

Sat

6/4

Rode to Costco w/Kyle & Dez

Some Supplements

No change from IV Rocefin

 

Sun

6/5

Visited at home w/Laura

Started

No change

 

Dorothy’s entire family is hosting a Party on Saturday, July 23rd.  This party is a thank you to all of Dorothy’s friends and family for their continued support.  Please mark your calendars.

Mon

6/6

 

Pool Aerobics

 

 

 

Tue

6/7

 

 

 

 

Wed

6/8

Monterey

Treatment w/Dr. Press

 

 

Thur

6/9

 

 

 

 

Fri

6/10

Soquel

IV Rocephin 1g over 30 min.

 

 

Sat

6/11

At home

 

Feeling a bit stronger

 

Sun

6/12

At Home

 

 

 

Mon

6/13

Water Aerobics

 

 

 

Tue

6/14

 

Treatment w/Dr. Press

IV Rocephin 1g over 30 min.

 

 

Dorothy is in the process of starting IV Antibiotic Therapy at home.  We will be starting w/1g Rocephin and 100g Vitamin C on a regular basis.  This should occur in the next few days.

Wed

6/15

 

 

 

 

Dorothy is now taking per day via IV 2 home Vitamin C (100 grams over 4 hours) and Rocephin (1g over 20 mins)  This is a tremendous relief, as we are now treating the Lyme disease.

Thur

6/16

Sebastopol

Dental construction work

Vitamin C 100g over 4 hours

Rocephin 1g over 20 mins

Feeling okay

Good appetite

Very thirsty from C

Fri

6/17

Visited w/Vicki Boscacci, Brenna Timewell and friend Tina

C 50g in 2 hrs (AM)

C 100g in 4 hrs (PM)

Rocephin 1g in 20 mins (PM)

Slight tingling in fingers during final C IV

 

Dorothy is in good spirits.  She is seriously working on her tan and is awaiting solar heat for the pool to do water aerobics daily. 

Sat

6/18

Stayed @ home

C 100g in 4 hrs

Rocephin 1g in 20 mins

 

 

Sun

6/19

Stayed @ home

C 100g in 4 hrs

Rocephin 1g in 20 mins

Sinus infection

 

Mon

6/20

Stayed @ home

C 50g in 2 hrs (PM)

Rocephin 1g in 20 mins

Zithromiacin

 

 

Dorothy’s 54th Birthday – Spent the day eating pie and talking w/Laura

Tue

6/21

Monterey

Therapy @ Dr Press

No C or Rocephin

Zithromiacin

 

 

Wed

6/22

Stayed @ home

C 50g in 2 hrs (PM), No Rocephin, Zithromiacin

Sinus draining

 

Thur

6/23

Stayed @ home

100g C in 4 hrs, 1g Rocephin, Zithromiacin

 

 

Fri

6/24

Santa Cruz

50g C in 2 hrs, 1g Rocephin, Zithromiacin

Occupational Therapy

 

Sat

6/25

Visited w/Laura and Karen

100g C in 3 hrs, 1g Rocephin, Zithromiacin

Feeling a slight percentage stronger, but bad headaches

 

Sun

6/26

Rocephin (No C)

Rocephin (No C)

 

 

Mon

6/27

Monterey

Therapy @ Dr Press

Rocephin (No C)

No headaches

 

Very nice visit from cousins Alice and Kathy, along with several family members.  Friend Laura and brother Bob also were there

Tue

6/28

Monterey

Ozone Therapy @ Dr Press

Rocephin (No C)

 

Headaches may be being caused by megadoses of C

Wed

6/29

Santa Cruz

PT, Rocephin 1g, C 50g

 

 

 

Thur

6/30

Monterey Aquarium

Rocephin 1g push 2x/day

Spent the day w/Kyle & Dezmond

 

Fri

7/1

Stayed @ home

Rocephin 1g push 2x/day

No C

Feeling slightly depressed

 

Sat

7/2

ALS Support Group Meeting

Rocephin 1g push 2x/day

No C

 

 

Sun

7/3

SF Zoo w/Kyle, Mojo & Dez

Rocephin 1g push 2x/day

No C

No detectable change from varied treatments

 

Mon

7/4

 

Rocephin 1g push 2x/day

No C

 

 

Spent the day w/family & friends in Fremont and Cupertino.  Watched fireworks and returned home late

Tue

7/5

Monterey

Ozone Therapy @ Dr Press

Rocephin 1g push 1x (No C)

 

 

Wed

7/6

Monterey

Ozone Therapy @ Dr Press

Rocephin 1g push 1x (No C)

 

 

Thur

7/7

Stayed @ home

Rocephin 1g push 2x/day

No C

 

 

Fri

7/8

Stayed @ home

Rocephin 1g push 2x/day

C 50g in 2 hrs

No noticeable improvement

 

Sat

7/9

Visited w/friends @ home

Rocephin 1g push 1x/day

C 50g in 2 hrs

 

 

Sun

7/10

Visited w/friends @ home

Rocephin 1g push 2x/day

C 50g in 2 hrs

 

 

Mon

7/11

Visited w/friends @ home

Rocephin 1g push 2x/day

C 50g in 2 hrs

 

 

Tue

7/12

Stayed @ home

Rocephin 1g push 2x/day

C 50g in 2 hrs

 

 

Wed

7/13

Stayed @ home

Rocephin 1g push 1x

C 50g in 2 hrs

Still no improvement

 

Thur

7/14

Stayed @ home

Rocephin 1g push 2x/day

C 50g in 2 hrs

IV Sulfoxime 200cc in 30 min

 

 

Fri

7/15

Stayed @ home

Rocephin 1g push 1x

C 50g in 2 hrs

 

 

Sat

7/16

Visited w/friends @ home

Rocephin 1g push 1x

C 50g in 2 hrs

 

 

Sun

7/17

Stayed @ home

Rocephin 1g push 1x

C 50g in 2 hrs

 

 

Mon

7/18

Stayed @ home

Rocephin 1g push 1x

C 50g in 2 hrs

 

 

Tue

7/19

Traveled to Monterey

Ozone Therapy @ Dr Press

Rocephin 1g push 1x (No C)

 

 

Wed

7/20

 

Rocephin 1g push 1x (No C)

Physical Therapy

 

 

Thur

7/21

 

Rocephin 1g push 1x

No C)

 

 

Fri

7/22

Visited w/Kathy Williams

Rocephin 1g push 1x (No C)

 

 

 

Sat

7/23

Party

No medications

 

 

Thanks to all that attended.  Dorothy’s spirits continue to be lifted by her visits w/family, friends and coworkers.  Dorothy & Jim have hired a caregiver for Dorothy 4 hours/day, several days/week. 

Sun

7/24

Visited w/many friends @ home

No medications

Lots of floating in the pool for Dorothy

 

Mon

7/25

 

Rocephin 1g push 1x (No C)

Physical Therapy

 

 

Supplements/Medications/Treatments used

Acetyl L-Carnitine 500mg 2/2x day (04/21/05-07/25/05)

Acidophilus (until 02/06/05)

Artic Cod Liver Oil 1 tsp 2x day (04/28/05-5/20/05)

Baclofen: 10 mg

Benfotamine 150mg 2/2x day anytime (04/21/05-07/25/05)

Brain Sustain™ (02/13/05 – 02/14/05)

Brain Vibrance™ (02/11/05 – 02/14/05)

Brainwave Plus® (Not yet in use)

Cats Claw 5 drops in water, then Ox Bile before bed (05/02/05-07/25/05)

Ceftin

Cefzil 500 Mg – 1/2x day (XX/XX/05)

Cholegest 1 per meal (04/27/05-05/27/05)

Cognitive Factors® (02/01/05 – 03/28/05)

Commensal™ 4xday (not w/antibiotics)

CoQ10 300Mg 1500 Mg/day w/food (04/21/05-07/25/05)

DIM 2/2x day (started 04/22/05-05/27/05)

E-Lyte Butyrate 3/2x day (04/20/05-05/27/05)

E-Lyte Oral Electrolyte 9 TSP 5x day mix w/food (04/20/05-05/27/05)

EGCg 3/3xday anytime (05/22/05-07/25/05)

EPA/DHA essentials® (02/01/05)

Female Hormone Treatment (04/20/05-07/25/05)

Folinic Acid 5/2Xday (03/01/05-5/20/05)

Goji Juice® (01/22/05-02/01/05)

                        Glutathione Injections - 1 after each Exchange or IV Drip  (02/15/05 – 05/11/05)

GSH: LipoCeutical Glutathione (01/20/05 – 02/05/05)

Herbal Biotic 3/2x day (03/01/05 – 04/17/05)

Immune Support 3/2x day (03/01/05 – 04/04/05)

InflaThera™ 3/3x day (03/01/05 – 04/17/05)

Keflex: 250 mg (Antibiotic) 1/4x day

Kirunal 2 in PM w/food (03/01/05 – 04/28/05) Replaced by Artic Cod Liver Oil

Leucovorin Injections - 1/day 3-4 days/week (04/25/05 – 05/11/05)

Magnesium Injections (1 per week) (04/06/05 – 04/27/05)

Nattokinase 3/2x day (03/01/05-07/25/05)

Nerve Calm .5ml/3xday (03/14/05-07/25/05)

Olive Leaf 1/3x day (started 03/01/05-04/27/05)

Phyto-ADR 3/3x day (started 02/08/05 04/29/05)

Phospholipid Exchanges– 37 Total Treatments  (02/15/05 – 05/11/05)

Pregnenolone 150mg1/2x day (02/08/05-07/25/05)

Primrose Oil 4/2x day w/food (02/28/05-5/20/05)

Prometol 5/day w/food (started 03/01/05-05/27/05)

Pycnogenol 2/2x day (05/07/05-07/25/05)

Rifampin 150 Mg – 2/2x day (04/28/05 – 05/31/05)

Vicodin

Vitazyme 5/2x day w/o food (03/01/05 – 04/28/05) Replaced by Wobenzym®N

Vitamin B12 Injection 2 ½ cc/day (04/26/05-06/15/05)

Vitamin D 2000 IU 1x day w/food

Wholly Immune (03/01/05 – 03/28/05)

Wobenzym®N 3/2x day not w/food (04/28/05-07/25/05)

Zithromax

 

Test Results/Doctor’s Reports

            Kennedy-Krieger - Submitted 1/31/05 - Results received 3/3/05                               

Lyme Testing - Test results indicate positive for Lyme

Lipid Testing (BodyBio)

Toxic Metals Test

 

eXTReMe Tracker

 

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